Kelley and Tom had hoped that meeting their daughter would be the happiest moment of their life. But when she came early -- at just 23 weeks and 6 days, that moment was full of terror and an impossibly difficult decision. And when the time came to face it, Tom and Kelley turned to their baby for help. Seeing their daughter for the first time, they looked for her to "declare herself." That's a phrase that comes up again and again to help guide decisions in Neonatal Intensive Care Units. But parents and medical professionals have very different ideas about what the phrase really means. Nurse Tracy Hullet and Neonatologist Keith Barrington describe the difficulty of interpreting the fuzzy boundary between a baby's strength of will, and simple physiology. Meanwhile Kelley and Tom are left to wonder, and wait.
Read more -- articles from Ketih Barrington and his wife and colleague Annie Janvier: